MY NIECE HEIDI USED THIS PICTURE ONCE AND IT JUST MADE ME THINK WHEREWE ARE AT WITH AMY. YESTERDAY A DHS WORKER CAME TO FILL OUT THE PAPERS TO
TRY AND START THE PROCEDURE TO HAVE HER APPROVED FOR THE ADVANTAGE
PROGRAM, WHICH WILL ALLOW HER 18 PRESCRIPTIONS A MONTH. IF CANCER HAS
NEVER TOUCHED YOUR DOORSTEP PRAISE THE LORD IT NEVER DOES.
THERE IS ENDLESS TRIPLICATE PAPERWORK BY EVERYONE THAT COMES TO
THE HOUSE AND WE HAVE ENOUGH HIPPA PAPERS TO WALLPAPER THE
WHOLE HOUSE.
SO MANY OF YOU ASK HOW AMY IS DOING. I AM TRYING TO STAY POSITIVE IN A
SITUATION IN THE NATURAL EYE LOOKS SO HOPELESS BUT THROUGH MY SPIRITUAL
EYES I SEE HER HEALED AND WHOLE AND FREE OF PAIN.
JUST A LITTLE BIT AGO I HAD TO GIVE HER PAIN MED THROUGH HER PEG TUBE.
I WAS LOOKING OUT THE PICTURE WINDOW AS KIDS, GIGGLING AND SHOVING EACH
OTHER, WERE WALKING TO SCHOOL. I COULD SEE AMY AND MY SON RICHIE
WITH THEIR BACK PACKS AND ME DRIVING THEM TO SCHOOL...."FLASHES OF MEMORIES."
ALTHOUGH I DID NOT KNOW THE CHILDREN I SAW TODAY I PRAYED FOR
THEM. THEY ARE OUR FUTURE...GOOD OR BAD....I PRAYED THE POSITIVE
AND THAT THEY WOULD KNOW THE LORD AND LIVE FOR HIM.
NO PARENT EVER THINKS THAT LIGHTENING WILL STRIKE ONE CHILD'S LIFE 5
TIMES IN 33 YEARS.
AMY WEIGHS SIXTY THREE POUNDS NOW. ONE MONTH AGO SHE WEIGHED 74.3 POUNDS.
HER LITTLE THIGH THAT ON 8/28/09 MEASURED 13 INCHES, NOW MEASURES 11 1/2
INCHES. SHE CAN NO LONGER WALK ALONE ON HER OWN......BUT HER SPIRIT IS
AS STRONG AS IT EVER WAS AND IF YOU DON'T BELIEVE GOD IS GOING TO HEAL HER
SHE WON'T EVEN TALK TO YOU. SHE IS AT PERFECT PEACE EXCEPT FOR PAIN, NAUSEA,
AND STARVATION.
SHE DESPERATELY NEEDS PRAYER FOR NUTRITION AND FOR THE NAUSEA AND
PAIN TO GO AWAY. WE CANNOT FIND ANYTHING THAT DOES NOT BRING ON
EXTREME NAUSEA AND/OR VOMITING WHEN WE FEED HER.
SHE TAKES ZOFRAN 4MG FOR NAUSEA....AND I HAVE
EVEN TRIED JUST GIVING HER 3 TABLESPOONS OF ENSURE EVERY 3 HOURS.
THAT IS NOT MUCH BUT EVERY LITTLE BIT HELPS. THE JEVITY CAUSED HER
TO VOMIT CONTINUOUSLY.
ON TO A VERY HAPPY SUBJECT FOR AMY
YOUR CARDS HAVE MEANT THE WORLD....YOU WILL NEVER KNOW THIS SIDE OF
HEAVEN, WHAT JOY YOU HAVE BROUGHT TO HER......PLEASE TELL ALL YOUR FRIENDS
TO SEND CARDS.......THE MOST CARDS SHE HAS RECEIVED IN ONE DAY WAS 12.....I
WOULD LOVE TO SEE HER FACE IF 24 ARRIVED IN ONE DAY. SHE IS TOO WEAK TO
DO ANYTHING, BUT WHEN "MAIL CALL" COMES HER EYES TWINKLE AND SHE IS ALL
SMILES.....SUCH JOY IT BRINGS HER. IT IS SOMETHING SHE HAS TO LOOK FORWARD TO.
THANK YOU ALL SO MUCH. SO MANY NEED PRAYER:
PLEASE REMEMBER ASHLEY, NICOLE, SHERRY'S FOOT, MARYDON'S EYES, TAMMY,
ROY AND ELIZABETH, LADY KATHERINE, PATRICIA, DENNIS, JEAN, RICKY,
CAROLE, MADONNA, KIPPIE, KIMBERT, MONTE, BRANDON, DORIS AND RICHARD,
TAWNA AND MIKE, LEILA AND KORBIE, KENDRA, HAROLD'S BROTHER, TOM,
DORIS'S ANGEL IN IRAQ, LADY PENNIWIG'S SON, ALL THE LITTLE SICK PETS,
AND PEACE IN THIS GREAT NATION OF OURS.
MANY THOUSANDS OF THANKS TO YOU BEAUTIFUL BLOGGERS.
MICHELLE OF ROSEBUD QUILTING IT WAS A JOY FOR ME TO TALK TO YOU
YESTERDAY. IT WAS OUR PASTOR THAT WAS AT THE DOOR AND I WAS STILL IN
PJ'S. I WAS NOT EXPECTING HIM. ANYHOO, YOU'RE A BLESSING.
ANGEL HUGS TO YOU ALL
LOVE
Debbie
Debbie, I think of you all everyday and say my prayer. These days with Amy are so precious and I know how your heart hurts. My Rachel went back to work yesterday and but for the grace of God may never have gotten to go back. Thank you for sitting down to send a post. I am so glad you both have such a strong support system. Oh geez the paperwork is a demon, for sure.
ReplyDeleteQMM
Hugs and prayers all around! You are doing an amazing job! Would you please email me your address. I'm going out today and I will buy cards.
ReplyDeleteHugs, Lisa
pupylov(at)gmail(.)com
Hi Debbie. I think about y'all often even though we do not know each other. My continued prayers for precious Amy. Sending big hugs from Texas.
ReplyDeleteBlessings,
Sandra
Debbie, I am keeping Amy and your whole family in my thoughts and prayers every day! I wish she could get some nutrition into her, I can imagine though with the nausea, its hard! You must be so tired of all the paperwork, I can't imagine. I'm going out tomorrow, will pick up another card for Amy,glad it makes her so happy:)
ReplyDeleteI would love to have my girls make cards for her. rusdar at hotmail dot com
ReplyDeleteThank you for posting an update on Amy. I am trying to think of what could go into the PEG tube and maybe stay down...one of my brothers was able to eat pablum for a long time, another was able to sip horchata, which is a rice drink from Mexico.
ReplyDeleteNow let me run to get a card for Amy, too. The mail is a big day-brightener if you are stuck at home.
Thank you Debbie for an update on Amy...God bless her and your family...Girl I pray every day for you...I'll get her another card in the mail...its the least I can do for sweet Amy...May you have a blessed day my friend...hugs and smiles Gl♥ria
ReplyDeleteGood Morning Sweet Sister,
ReplyDeleteI pray for all of you every minute, of every hour, of every day. I pray for peace, for strength, for courage, for patience and for love. To surround all of you. My sweet Amy Girl, please give her a hug for me this morning and remind her how much I love her. I mailed another card yesterday and two more are going out today. I know how she loves to get mail. I would so love to see her get (50) in one day. Maybe that should be our challenge. The mail man would have to ring the bell, as they would not fit in the mailbox. I'll have to see what I can do about that. I am still holding you up honey. Still holding you up. Talk to you soon. I love you, Your Sis, Sherry
Dear Debbie, I'm with you and Amy..I continue to see her well and whole through spiritual eyes. It is never too late with God...He alone knows the number of her days. The fact that she isn't giving up speaks volumes of her faith in her BIG GOD! Whether He brings her through this with His miraculous power or He brings her to His side in Heaven, she will have won the battle. I am so proud of her and she is such an inspiration to me...I would only hope and pray that I could have the strength that both of you have shown us through this horrendous trial. I continue to pray for her total healing, for your strength as you care for your precious girl, and I pray for you to know God's peace and comfort. God bless you, Debbie, and God bless sweet Amy Dawn.
ReplyDeleteLove you,
Mary
Debbie, I continue to offer up prayers for you, your family and most of all your sweet Amy. I would love to send her cards. If you have a second one of these days, leave your address on a blog comment.
ReplyDeleteAmy
Bless her heart, Dear Debbie. It does my own heart good, to hear that despite everything, she still smiles! My heart goes out to you, as I can only imagine the paperwork you are facing, and fighting your way through, just to get to Amy, who needs your love and attention far more than a bunch of government pencil pushers ever will! (Shame on them all, as far as I'm concerned!.. especially in this time of big bailouts for others!) Anyways, Amy is still in my prayers, as well as all your family at this time.. ((Hugs)) ~tina
ReplyDeleteI would love to send Amy a card. Will you email me your address?
ReplyDeletePraying and believing God for His very best for Amy! I cannot imagine having to walk this - but I thank God for your testimony and Amy's! God bless you all Debbie.
ReplyDeleteI'm sending Amy a card tomorrow! She is in my prayers.
ReplyDeleteTraci
Oh Debbie, I have tears in my eyes thinking of that precious tiny Amy laying in a bed with a big smile on her face when you yell mail call! I am sure you are overwhelmed with all that is happening, and I know that everyone out here in Blogville appreciates you taking the time to sit down and do a post to let us know how Amy is doing. Her courage and her spirit are amazing, and I am still praying for her and for all of you. God bless all of you. love ya, laurie
ReplyDeleteDebbie, after reading these comments, I began to wonder about something. I already have your address, because Sherri posted it, so apparently that's ok with you. I just wondered if there was someone or some business close by that wouldn't mind cards coming to Amy at their P.O. Box, so that your home address would not need to be shared with the world. I was going to put something on my blog about sending cards to Amy, but wasn't sure if I should post your home address. When you get time, let me know. Thanks. laurie
ReplyDeleteDear Debbie,
ReplyDeleteThank you on the update on Amy - we all want to know how she is. I know it must be painful for you to write all this down yet it may be relieving as well. I don't know. All I can offer are my prayers.
Sandie
Continuing to pray for you and Amy. Thanks for taking the time to update.
ReplyDeleteLoved Sherry's idea today and will be sending a little note on shortly!
ReplyDeleteLove Hugs & prayers for all of you!
I am still praying for Amy, she is such a brave person. If you send me the address I will gladly send a card, thank you.
ReplyDeleteDear Debbie, a little surprise should arrive tomorrow and I will mail another in the morning. My thoughts and prayers and heart are with you all, especially sweet Amy.
ReplyDeleteLove from Buttercup!
Be Embraced
ReplyDeletehave you thought of ginger tea? for nausea, even a tiny bit at a time?
ReplyDeleteAlso plum paste or Japanese plum concentrate it is high is alkaline as apposed to the acidity.
just a thought
A prayer for Amy.
ReplyDeleteHello Debbie,
ReplyDeleteI am so happy and I admire you and Amy (always)for having such strong faith (which is still a gift from God). You are lovely ladies and you have a lovely family. Amy is a very strong woman I see. Bless her. and bless your family.
Mizpah to all of you!
Li
Debbie, I am still praying and believing. God Bless. I also just sent off another card. Hugs, Marty
ReplyDeleteHi Debbie,
ReplyDeleteThank you for the update. I am still thinking of you all and praying. God give you all strength and comfort.
Blessings,
Sandi
Dearest Debbie, what you saw when you looked out your window were the "heart pictures" you took years ago -- that's what my Mom called those precious memories.
ReplyDeleteI can't express how my heart breaks for you. Amy will be healed by God's own Hand; the prayers go on.
Blessings to you and Amy, and your dear sister -- Cass
Hello Debbie,
ReplyDeleteI have been following Amy's story on Sherry's blog. I am so impressed with the fight in your girl! I sent a card from CA yesterday. I'm afraid I dated it for next Tuesday. I'm a bit out of sorts as my little one has been sick with the flu. My mom saw the note I put on my blog and said she would also send a card today. Hers will be the one with unreadable handwriting!
Praying for Amy's health and comfort.
Dawn
My special one, good day ~ It was so good talking with you the other night again. I do look forward to our chats, Deb. Amy is constantly on my mind in prayer for relief ... please give her a hug for me. Hugs of love, Marydon
ReplyDeletePS I'll be fine once the ragweed, mold & grass allergies pass thru ... TY for the sweet prayers.
I found you thru DeeDee at Good Morning Arizona blog and Lady Bug From Texas. You have touched my heart with Amy's illness. I am praying for Amy and the family. She must be a very brave girl. I will be sending her a card. I wish I was there to hug you. Cyber hugs are on the way. May God Bless you. He is still in the business of healing so I am glad that you have claimed the Victory.
ReplyDeleteHi, Debbie. So many prayers are coming your way. I saw your response to Becca and when I read 'people might not want to visit a blog where there is sadness' I was immediately drawn to visit.
ReplyDeleteSomeone above suggested something similar to rice water (rice boiled in 2-3 times the amount of water until the rice is softened into liquid). It is so hard to find something that isn't sweet and rice is as bland as it gets. Baby rice cereal, thinned would work as well.
You might consider not sending the Hospice aide away. Ask the supervisor of she can spend the time allowed at your place doing tasks like folding laundry while you bathe Amy, to free you up for some other tasks. If nothing else, she could sit quietly with Amy while you take a few moments for your self care or go outside for some time alone and prayer.
Oh, here I come, full of ideas. Do what works, and know that people do care and desperately wish to help.
Thanks for visting my page! It's nice to meet you!!! Yeah if I had more money I would buy more Lady vases but all the ones I really love are way too expensive!! Oh well. I treasure the ones I have been blessed to have. Have a great day!! Keep in touch:-)
ReplyDeleteDear Debbie, I just heard of your daughters illness through one of my bloggy friends. I was heartbroken for you while reading your post. I have sent a card to Amy with a smiley face on the envelope. Pleae know that you, Amy, and all of your family are in my thoughts and prayers.
ReplyDeleteHi, Debbie: I just wanted to let you know you are always in my thoughts. I visit your site and Sherry's every day. As the mother of an only child I can never ever think of anything appropriate to say. I just can't. But, always thinking of you.
ReplyDeleteI'm so sorry it's been such a struggle and they don't make it any easier with the endless amounts of paperwork. You are in my thoughts and prayers constantly.
ReplyDeleteI'm so sorry to hear of your daughters illness...I will definately be keeping her and your family in my prayers...it's nice to hear that so many are sending cards and letters...that makes me happy...Praying...
ReplyDeleteWith Love, Jerelene
Hi Debbie, So good to read your update on sweet Amy. Give her a big hugs for me and tell her we are all there with her in spirit. I know all about the health care problems, My Daughter passed away due to the lacking in our health care system. It hurts me so much to know this great country of our is so lacking in proper health care. Be strong sweet friend, god will carry you through even when you fill like there is nothing left.
ReplyDeletehugs and prayers,
Judy
We saw your story when we stopped by at Charlie's blog - we would love to send Amy a card. Our email is on our blog but I am pretty sure it is marthabasset@googlemail.com - we would also be happy to do a post on our blog if that would help generate more cards and more prayers.
ReplyDeleteAll our love
Martha, Bailey & their Mum xxxxxxxxxxxxxx
Hi Debbie
ReplyDeleteMany times during my day you and Amy are on my mind and in my prayers, please know how much I care. You and Amy have brought so much strength an encouragement to all of us. Thank you so much for updating us, please give her a big hug for me today.
Hugs,
Sue
Something came to my mind as I was reading this post. When my husband was in the hospital for heart valve surgery they gave him food with splenda in it - it was called lo cal - and they said it was "good for him" to have lo cal. He is 6 feet tall and weighs 160 pounds - not sure what the lo cal thing is - but anyway - after eating the splenda laced foods he was violently ill - couldn't keep a thing down. Just in case any product you are feeding your daughter has splenda in it - I wanted to let you know that many people vomit violenly after eating it - and they then become malnourished by the very foods that the doctors and nutritionists are saying they should eat. This is just to let you know about the results of splenda in many people - and if this can help your lovely daughter, then I am glad for that.
ReplyDeletePeace to you all.
I cannot help but think of Amy when I say a prayer for my Dad. It's not an easy task to sit and watch a loved one suffer so, I certainly admire your endurance Debbie. I wish you Faith, Hope and continued Strength.
ReplyDeleteWarmest hugs,
Sandi
Dear Debbie,
ReplyDeleteIt's nice to meet you too. Thanks for leaving your comment on my blog. I would love to cheer up your precious Amy by sending her some cards. If you just tell me where to mail them to, I'd like to start right away. God bless you and your family. I will definitely pray for you and your family. I can't even imagine having to go through all that misery with a child. I, too, have a daughter about Amy's age, and I do thank God every day for her and ask for his blessings because without him we are nothing!
Love,
Doris and Gizzy